Bleeding Disorder News #71 - 10k Improves QOL; Realizing I was a Runner; Equitable Access

This weeks key stories:

San Bernardino 5-year-old living active life thanks to innovative hemophilia treatment | News
News - Loma Linda University
Kevin had hemophilia, a blood disorder in which the person's coagulation system lacks the ability to produce blood clotting factors that are critical

World Hemophilia Day 2024"Equitable access for all: recognizing all bleeding disorders"
PR Newswire
PRNewswire/ - On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day.
world federation of hemophilia News & Press Releases | PR Newswire - PR Newswire
Today on World Hemophilia Day, together let's learn to recognize all bleeding disorder and ... - Instagram
Full Coverage

Today's World Hemophilia Day trumpets 'Equitable access for all'
Hemophilia News Today
... disease. April 17 ... Hemophilia and other bleeding disorders are marked by problems with blood clotting ... It's men, boys, women and girls. It's the ...

Understanding the genetic basis of bleeding disorders | Faculty of Health Sciences
Faculty of Health Sciences | Queen's University
... Women with bleeding disorders can wait up to 15 ...

Here is how much you should be budgeting for groceries every month - Business Insider
Business Insider
USDA's recommended monthly food budget for a family of four has risen 27% since 2020. Tools like meal planning, coupon apps, and shopping in bulk ...
 
Infected blood scandal: Boy, 7, died from Aids after doctor ignored rules - BBC
BBC
In January 1982, more than a year before Prof Bloom first treated Colin, he co-wrote a letter to all haemophilia centres calling on them to give ...
 
Articles and Key Findings on Hemophilia, CDC
 
Study Finds Men with Hemophilia Have Higher Rates of Depression, Anxiety, and Obesity than the General U.S. Male Population
 
World Haemophilia Day: Why Majority Of Haemophilia Cases Go Undiagnosed? | OnlyMyHealth
OnlyMyHealth
Explaining what haemophilia is, Dr Jijina said, “Haemophilia is an uncommon clotting disorder which manifests when an individual lacks a specific ...
 
Is Haemophilia In Women Undertreated Due To Lack Of Awareness? | TheHealthSite.com
TheHealthSite
Diagnosing haemophilia in women poses significant challenges, primarily due to the absence of a family history of the condition in some cases, ..
 
World Hemophilia Day: Aiden Peterkin on a mission to help patients with rare condition
KTAL
March is National Bleeding Disorders Awareness Month and April 17 is World Hemophilia Day, so it's an opportune time to educate your viewers about the .

Realizing I Was a Runner, Despite My Hemophilia - Men's Health
Men's Health
... hemophilia A, a rare disorder that prevents his blood from properly clotting due to a missing or defective protein called factor VIII. “The first ...
What is hemophilia, and is there a cure? | Nebraska Medicine Omaha, NE - Nebraska Medicine
What Is Hemophilia? (for Kids) - Arkansas Children's - Kids Health
Hemophilia Factsheet (for Schools) (for Parents) - Arkansas Children's - Kids Health
Full Coverage

Long-Term Data Demonstrate Emicizumab Safety, Efficacy in Hemophilia A
American Journal of Managed Care
Historically, people with hemophilia A have been treated with prophylactic factor replacement therapy, explained the study authors. The therapy was ...
A Multi-Center Observational Study in Males with Hemophilia - Clinical Research Studies | UPenn Studies
The Gene Therapy Clinical Trial Experience—What to Know | HemAware - HemAware
[Research] Help test an online self-help program for individuals with chronic health ... - Reddit
Full Coverage

Study Suggests Walking 10K Steps Daily Improves QOL in Severe Hemophilia
American Journal of Managed Care
Among a small group of patients with severe hemophilia, researchers found that getting in more than 10000 steps each day was linked to significant ...

Cyclophosphamide therapy may be better for some AHA patients - Hemophilia News Today
Hemophilia News Today
Cyclophosphamide therapy may be better as an add-on to steroids for patients with acquired hemophilia A with a poorer prognosis, data show.
Successful treatment with low-dose rituximab and cyclosporine in acquired hemophilia A - Saudi Research Bank (SRB)
Full Coverage

Activity wristbands may help men with severe hemophilia: Study
Hemophilia News Today
Men with severe hemophilia wearing activity wristbands to self-manage their physical activity saw improvements in physical health in a study.
 

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